Newsletter

×

Jizerská 50 - SkiTour

CGI IT Czech Republic s.r.o.
Zadarmo na Google Play

Nainstalovat

Charity

Little Anetka needs a new wheelchair. Will you help her?

Thanks to all of you the ČEZ Jizerská 50 is more than just a joyful event in the white tracks. Even this year, in the 57th edition, you can contribute to a good cause and provide help exactly where it's needed. Together, we will support Anetka, a 13-year-old warrior fighting against cerebral palsy. Her prospects haven't been rosy since birth. Two-thirds of her brain were irreversibly damaged – according to medical prognoses, Anetka was supposed to be bedridden, deaf, blind, and unable to communicate. However, this young lady showed the world that she envisions her life quite differently!

Through ČEZ Jizerská 50, via Nadace rozvoje občanské společnosti – Pomozte dětem, each one of you can support Anetka.  You can do so in the registration procces in sportID or HERE. The funds raised will be used to purchase a new wheelchair and finance costly rehabilitations that insurance doesn't cover.

ANETKA'S STORY

Right from Anetka’s birth, my husband and I started applying intensive therapy using the Vojta method, gradually adding other therapies such as craniosacral biodynamics, hippotherapy, speech therapy, neurofeedback and neurological kinesiology. At the age of four we added neurorehabilitation and at the age of five, thanks to the combination of all these therapies, Anetka started to take her first independent steps. At that point, we added a locomotive (robotic gait training) and neurorehabilitation became our essential rehabilitation. Anetka still does it two to four times a year, depending on her needs and abilities. Anetka has had two foot surgeries, for three years she wore special orthopaedic braces from the Austrian company Pohlig, which were regularly adjusted to fit her, now we are testing her endurance with custom-made orthopaedic insoles made by the same company.  In the summer of 2020 Anetka developed epilepsy and is on full antiepileptic treatment. At the moment, Anetka is fully dependent on the help of a third party for all her activities.

With the combination of all the therapeutic treatments, Anetka can walk indoors and for shorter distances independently, for longer distances we use a wheelchair. On stairs she needs the support of a handrail or a support person. She is very resilient and tries to keep up with the people around, her younger sister Žofinka, who is 11 years old, is also a great motivation for her. Anetka has been attending a special primary school for sixth years. She is mentally at the level of a child of about 5 years old and struggles with severe psychomotor retardation. At the same time, she is very social and popular among other kids. She likes to paint, play with fluffy toys, she loves music and books (even though she can’t read) and enjoys riding her specifically adapted tricycle. Due to her intellectual disability, she is more interested in skills than gaining knowledge – she likes to help others, she likes to work in the kitchen and she enjoys being useful. Unfortunately, she is rather limited by her motor disability in this.

Anetka loves obstacle courses where a team of volunteers always help her to overcome all the obstacles and get to the finish line. Just like we try to overcome the obstacles in Anetka’s life together and reach our goal which is that one day she could live an independent and happy life. This would not be possible without various foundations and all the bigger and smaller donors, because the therapies that help Anetka are not covered by health insurance. We appreciate all this help immensely for without it we would not be able to give Anetka the care she receives, and the negative prospects she was given at birth might have been fulfilled.

We will use the financial support we will get from NROS – Pomozte dětem for getting a new wheelchair, because she has outgrown the one she has at the moment. We would like to use the rest to pay for neurorehabilitation sessions which are an essential part of her life.

We love Anetka very much, she’s our sunshine and our love and with her sister Žofinka they make a great team. Our life with her has taught us to appreciate the little things and it has strengthened the most important thing – our family. Anetka will always get as much of our support as possible. Thank you from the bottom of our hearts and for your help! 

How can you support Aneta directly?

Through SportID as part of the registration process

Directly through NROS

Or using this QR code

 

We want to thank you for your help! 

Races 57th CEZ Jizerska 50

ČEZ JIZERSKÁ 50

11. 2. 2024

  Race cancelled.  

JIZERSKÁ 25

10. 2. 2024

  Race cancelled.  

ČT JIZERSKÁ 10

10. 2. 2024

  Race cancelled.  

MINI JIZERSKÁ POJIŠŤOVNY VZP

9. 2. 2024

  Race cancelled.  

VOLKSWAGEN BEDŘICHOVSKÁ 30

8. 2. 2024

  Race cancelled.  

ČSOB Jizerská 17

8. 2. 2024

  Race cancelled.  

T-MOBILE JIZERSKÁ FIREMNÍ ŠTAFETA

9. 2. 2024

  Race cancelled.  

ORLEN SPRINT

9. 2. 2024

  Race cancelled.  

FACEBOOK INSTAGRAM

General partner

    ČEZ

Premium partner

    T-mobile

PAYMENT PARTNER

    ČSOB + Mastercard

Main partners

    ORLEN
    VW užitokové vozy
    PVZP

General media partner

    Česká televize

Main media partners

    Evropa2
    Sport

Main institutional partners

    NSA
    SLČR
    Liberecký kraj
    #VisitCzechRepublic
    Ministerstvo pro místní rozvoj

official partner

    Grant Thornton
    Volkswagen FS
    Generali Investments
    Česká mincovna
    SWIX
    Preciosa

official suppliers

    Jizerská o.p.s.
    Albrecht
    COOP
    Johnny Servis
    PERI
    ČHMÚ
    Pytloun
    Pacovis
    TKF
    Progres
    Královka
    Kitl

Media partners

    Kudy z nudy
    RTM+
    Liberecká drbna
    Nordic
    A11
    Liberec Český rozhlas

Collaborate

    ČHS
    Freelo
    Smartemailling

Part of the series

    Worldloppet
    Visma Ski Classic
    SkiTour

institutional partner

    Liberec
    Jablonec nad Nisou
    Frýdlant
    Obec Bedřichov

Partners

    Enervit
    Ahrend
    Intersport
    Madhus
    Kama
    DB Schenker
    Nisa
    Asklepion

organizer

    SkiKlub

CO-ORGANISER

    Asociace sportu pro radost

MARKETING PARTNER

    Raul